That title is because we went to the GI doctor on Thursday and the nurse's name was Joe;) We didn't get a lot of new info. at this appt. I was hoping they would help us with his eating etc., but all they did was adjust the meds he was already on. Which so far haven't helped because he is still puking about once a day, like this morning (Saturday) he puked so hard his feeding tube popped out. Anyway back to the appt., they were happy he was gaining weight (10lbs. 10oz.) so they said whatever we were doing keep it up. Dr.Jackson asked when I was getting my Doctorate because I knew it all. So we are still the same, home is getting more normal, still couldn't do it alone. Aunt Kimmie left Saturday, she said she knew we were doing a lot, but she could not imagine until she got here and was helping just how much it really takes to take care of him, his schedule is very demanding. So when we go to these seemingly pointless appts it is very hard on both Teagan and me to pack around all that he needs. OH, I have been trying bottles here and there and he does pretty good for about 5-10mins. We did take Mason to Iron Man Friday night it was way good. We had to be home by 8 to give Teags his shot, but G-ma Dee and my aunts did a good job watching him so we could go out. We went with Thatcher's family, it was really fun to get to know them better. We got Mason and Sawyer Iron Man Masks they looked to cute. It was a fun night, but of course I could not stop thinking about Teags and how I wish he was with us, someday right. Until then we will just keep praying for a strong heart and a settled stomach.
Biopsy and Fun
3 days ago