Well my finger is starting to be usable again so I am back to my blogging world. Lots has been happening around here. Teagan has had a hard time keeping his stats up and jumps all over with his oxygen, in one day he could need 2.5 liters and then go all the way down to 1/16, it's crazy... but the doctors say it is fine as long as we keep him in his range. Dr. Koretus' Secretary called yesterday and they scheduled his Glenn for July 22, they feel his aorta will be healed by then and they can go a head. Teagan weighs 14lbs. and 3oz. Dr. Harris says we are so blessed that way, he claims these kids should be failure to thrive and our Teagan is thriving to fail by outgrowing his sano so soon. Teagan gets really bad tummy aches... I can't decide if the extra oxygen causes more air in his belly or if the tummy aches causes him to need more oxygen. Sometime he is almost inconsolable and it scares me because he will drop into the 50's when this happens, when Mason would cry I knew he would be OK eventually, but with Teagan I don't know what will happen. We have had some pretty emotional weeks since his cath. I feel like we reached our peak a few weeks back and now we are fall down a fast hill and I pray we can catch him before we hit bottom. I have a lot of faith in our medical staff, I think they were worried that I was pretty upset after they canceled on us on our way up there... but I know it was an answer to prayers that Dr. K caught that before he got in there ans said whoops!
We have lost one of our sweet-hearts, Charlie. We met him while we were on the third floor, me and his mom became friends and even got mistaken for each other. He flew to Boston to meet his dying grandma a few weeks ago and then took his last flight home to be with her until his parents can be with him again. I am thankful for the plan of salvation, that I know no matter what we can be together again and that this earthly existence is a very short time in the eternal prospective . May the Comforter comfort them at this time is my prayer.
Also Eden another sweet-heart returned to our Father in Heaven, her Dad's final words are very comforting to me so if you can check out her blog. We don't know how long our sweet-hearts will be here, but I know they each will fulfill their mission no matter how long that might be. Our job is to love and take care of them as long as we are allowed.
1 day ago