Saturday started a little gray. The doctors were a bit concerned by his color, Ryan said it was the hideous blanket under him,so they watched him extra close. The chest tube was still draining a lot of fluid, it's called Chylothorax (Matt). The steps to getting rid of it are fat-free formula, then take away food all together, then more meds, and last but not least surgery. The doctors tried one and now two, so we will see. No update on the clot hopefully they will do another echo on Monday. He had an IV in his head, they say it's the best veins in babies. My baby is now a meth baby, Methadone to get him off his pain meds.
Today we arrived to some good news, over night his fluids draining went down by 50% from the day shift. We pray that it will continually go down and his body will fix it all on it's own, without surgery. His color looks great today, babies should be pink. Church up here is awesome, it's only a half hour, & only one speaker. The spirit is very strong here, everyone feels for everyone else, but not one would trade their trial for anothers. Teagan became very alert this afternoon and Mason sang him songs and we read him a story. He tried some spontaneous breathing trials and he did well, so as long as the tube fluid keeps diminishing they will look at taking his breathing tube out in the next couple of days. So far a pretty restful and peaceful day. I want all of you to know that your prayers are working, we truly feel them. I don't think I have ever been on the receiving end of so many prayers. If you are wondering what to do for us just keep praying for Teagan's continued recovery.
Teagan's sweet girlfriend, Gracie is struggling today. Her Heavenly Father misses her very much and wants her back. We pray for her and her wonderful family and trust that Thy will will be done. The Plan of Salvation is in full gear up here. We are thankful for knowledgeable doctors and nurses, but we know it's all in God's hands. I can see that Teagan is living up to his incredible name, he is a fighter, he wants to get better and even though we have our ups and downs, out of the five children up here with HLHS he is doing the best (knock on wood). We continually think and pray for all of the children up here, they are truly special spirits here to teach us God's simple plan of faith and enduring to the end, no matter how close it may be.
Biopsy and Fun
3 days ago