(I started writing this last night so sorry if it doesn't make sense.)Yes it is true we are home, ahhhh! We left at about one, after we said goodbye to a few nurses and some heart friends. Teagan has his days and nights mixed up because he has been sleeping all day and we were up all last night (Thurs.). When we arrived home we met Home Health to set up his feeding pump and meet our home nurse, Joe. We have been going over Teag's meds after we spent $115 at the pharmacy, luckily we only have to do meds twice a day with his shots and a few meds are as needed. He is having his first at home feed right now. Now it is up to us to know and feel that something is wrong, I pray that I will listen to the still small voice. As the nurse left tonight he said he wishes Teagan to get well soon, apparently he doesn't understand our condition, but oh how I wish it were true. Everyone thinks I should be so excited to be home, and I would be if we were just here getting better and he was going to be normal in a few days, but we are in this for the long haul and right now it is scary because so much could go wrong. He has to be watched every second and can not cry or be upset for too long because his heart rate will soar up. It is hard, but we will do it everyday for as long as we are allowed. I don't mean to complain, but it helps to write out my feelings and then I feel all better. We saw a lot of sick kids come and go from PCMC, but I aways new when they went home they would be better. Our case is just a little different and that's ok we can do it a day and a med at a time. I don't know how much time I will have to write this blog anymore now that we are home and getting adjusted, but I'll try to update on the important stuff. Thanks again for all of the love and support and especially the prayers because without them we would not be to this point.
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.