As I sit in the PCMC PICU I look around and once again feel grateful for my own trials. I see a sweet 20 year old girl spend day and night next to her 21 year old boyfriend/fiance who is in critical condition with lung cancer awaiting the day when they can be married. I see a very young single mother who is from Alaska who just gave birth to a baby diagnosed with HLHS and has just had his first surgery who's support system (her parents) have to fly back to Alaska tomorrow. A family who's daughter has HLHS and their nephew passed away from HLHS. A family fight to get their son well enough to get home to spend his remaining days at home while fighting with HLHS. A little boy who is critical after having been hit with a pipe bomb. A boy surviving on the Berlin Heart while he waits for his transplant. A baby girls family watching her endure her first open heart surgery after being diagnosed with a CHD that has NO survivors. A girl who thought she was just getting a hip replacement and now has thyroid cancer. A baby girl with a serious CHD that after being told it is time to let her go is preparing to go home to be with her family. A baby boy who needs a heart and just got taken off the list because of a infection. And after hearing of three abused children who only one is still here barely hanging on. Also many more rooms and floors of children and grieving families I don't even know. Lets just say I'm very thankful for a pretty restful day and no big events. Teagan has just rested most of the day with an occasional eye open to see his loving family waiting patiently by his bed side for when he can be in our arms once again. His lung has re-inflated and they beat his chest every six hours to get the crap out (he is sounding much better). They say maybe tom. or Mon. to try extubating again, but like they said it is up to him. We all understand we live on T-Time and when he is ready we will know.
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.