Linda NP has come by twice. First to tell us it has taken over an hour to get through the scar tissue and now at 11 he is officially on the heart and lung machine and now will be starting the repair. Dr. K told us yesterday the Glenn should be pretty simple (at least to him), but he is concerned with his aorta. It will take the most time and work. He weighed over 15lbs. today and his blood draw came back a little high in potassium...we better lay off the bananas;) We have already made friends with the other heart family (Dr. Hawkins), a little girl with HRHS, 2.5 years old getting her Fontan.
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.