Last night, Wednesday, a bunch of us families that have met in the PICU, went to a nice dinner at mine and Ryan's favorite restaurant, Canella's. Ryan treated everyone and when they offered to pay we just told them to pay it forward. We wish we could do more, we told everyone we are not talking about sad stuff, just happy stuff tonight. I think everyone had a great time laughing and chatting and we all felt good leaving our kiddos with very skilled, very expensive babysitters. We said if we told the waitress where we were from she would probably cry, "My kid only has half a heart", "My kid had a portion of her brain removed", "My 2 month old needs a heart", "My son has been waiting for a heart all summer", "My daughter is going home, because there are no more surgical options", "My daughter has 3 different clotting disorders and the docs are not giving us much hope". Yet here we are laughing and caring on, we understand each other, we don't like our situations, but we accept them and without these trials we would have never met each other and made these lasting friendships. I am so grateful to IHH, and PCMC for the family we have made. I want to thank Carolyn for letting Hope's heart live on through these kids and for comforting the sweethearts in their time of need. It was a much needed night out and fun with friends who know and understand what we are going through without even talking about it! I love you guys, thanks for your examples of enduring to the end! P.S. G-ma Ann, what is Alex's care page?
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.