Saturday, February 14, 2009

Happy Valentine's Day & CHD Awareness

I am copying this post from Mindy, Mckay's mom, I think she said it best:
Today we'll all be thinking about our hearts--our sweethearts, our dear hearts, those with big hearts who will leave us feeling all kinds of fluttery with warm Valentine wishes. May I ask that you remember some of the littlest hearts this week, too?

February 7-14 is Congenital Heart Defect (CHD) Awareness Week. And although, CHD is the most frequently occurring birth defect and the leading cause of birth-defect related deaths it receives little to no funding for research, prevention or awareness. It's time for that to change. Here are some facts about CHD that may interest you:

Sometimes during early pregnancy, a baby's heart fails to form properly, resulting in structural abnormalities known as Congenital Heart Defects. Although some defects are genetic, in many cases the cause is unknown.

It is estimated that 40,000 babies with Congenital Heart Defects (CHD) are born in the United States each year. More than 1 million American children and adults with Congenital Heart Defects and Childhood Onset Heart Disease are alive today.

Although some babies will be diagnosed at birth, sometimes the diagnosis is not made until days, weeks, months, or even years after. In some cases, less fatal CHDs are not detected until adolescence or adulthood.

Some CHDs may not require treatment other than periodic visits to a Pediatric Cardiologist. Others can be treated with medications or repaired with surgery and/or procedures. Complex defects may require several surgeries and are never really "cured."

In the US there are nearly twice as many deaths due to CHDs than that of all forms of childhood cancers combined. Yet there is 5 times more research for pediatric cancer than for CHDs.

Only about 30% of the children who need a heart transplant receive one in time.

About 40,000 units of blood are used daily & only about 5% of adults who can donate blood do so. Someone needs blood every three seconds in the United States; that someone is often one of our heart children.

Many cases of sudden cardiac death in young athletes are caused by undiagnosed CHDs and Childhood Onset Heart Disease. It is estimated that more adults than children are living with congenital heart disease, and this population is expected to grow by 5% each year.

It's time to talk about Congenital Heart Defects. Excuse my soapbox, but it's time to give families more advice than to consider termination. These kids are worth saving! It's time to raise awareness and start to look for the reasons CHD is becoming shockingly more common.

What can you do? Support research. Be an organ donor. Give blood. Donate platelets.

I never knew much about CHD's before this past year and now it is near and dear to my heart. Not only will my son suffer from one for the rest of his life, but we have made so many friends whose children also suffer or they suffer the loss of their heart baby. Please take a moment today to ponder these facts. Have a great Valentine's Day with the ones you love, these are mine:


Chelsee said...

Wow that blows my mind. I will rethink my aversion to giving blood. Cute pics

Hollie said...

Your boys are so CUTE! I can't believe how big Teagan is getting! Sorry I wasn't able to bring Ben to Mason's party, my car isn't cooperating with me very well at the moment! I think about you tons and hope things continue to go well!
Love you!
Hollie and Elaina

Tami Acord-Nelson said...

Awwww! So cute! Cant wait to see you for Teag's b day! We are all healthy and are counting the days!

Crystal said...

I came across your page through a mutal blogger. We were also blessed with a heart baby. My daughter is 6 months old and has Tetralogy of Fallot. She will be having open heart surgery in May.

Your little babies are adorable. Although different conditions your son's experience helps give me hope!