Wow, lots has been happening now that we are home and I think I will be lucky if I can blog weekly. The latest and greatest news is Daxton got his new heart yesterday on Teagan's 6 month b-day. I was able to go sit with Hilary and her family during the surgery because my wonderful Mom and Big G stayed home with my boys. Hilary has a great support system, I don't know many people whose mom and mother-in-law are best friends and work so well together to help Hilary with her house, girls and t-shirts! Once again I was very touched by being able to see Daxton's old heart it was big for his body, but still a very small heart that was very sick. Dr. Kaza, and may I say what a wonderful surgeon he is so kind and personable with a very funny Utah story ask me about it, anyway Dr. Kaza came out to tell Ryan and Hilary how well the surgery went and all I can remember him saying is, "Daxton's heart was very sick, his BT shunt shouldn't have lasted this long, it is a testament to you as his parents that he is still here." It brings tears to my eyes just to type it. I hope Daxton continues to do well and can get home real soon, like a girl with ruby slippers once said, "There is no place like home." Being home has been great for us we are establishing our new normal, I kind of forget when people come to visit and T has a episode of wrenching and gaging, that it scares people because that is getting pretty normal to me. I still hope it will go away in a few weeks like GI plans.
Amber is back and we are so glad to have her, she does a great job with Teagan and it is very nice to get a full night's sleep. We are only having her three nights a week instead of five, but she stays longer from 10-8. Thanks Amber for giving up your nights for us and especially for loving our little man so much!
We went to see Dr. Harris on Tuesday and he is happy with how well he looks, he gained weight 16lbs. 8oz., it is just a miracle because I don't think he is getting enough food. Dr. Harris did inform me and my Mom that anyone who will be around T this winter, especially kids will need to have a flu shot. So if you come over after Nov. you must have had a flu shot. T not only has to have a flu shot, he also needs these special RSV shots (Synergist?) every month up until April so he doesn't end up back in the hospital.
I forgot to mention in my last post that Ryan and I celebrated our 6th wedding anniversary on the 5th. My Mom made us dinner and then we loaded the boys in the car and went to get take-out ice cream from Leatherby's. Not very romantic, but a dream come true for me. We have never been in the car as a family to go out. T has never been in the car after dark, he thought it was so cool and Mason was very excited to have his brother next to him.
On Monday me and the boys went with G-ma Dee and Big G to UVU to take our new college student, Cortney some things. We went to lunch at Fridays, also a first for T, he has never been in a restaurant. The long car ride was also a first. Cortney seems to be having a great time at school and meeting new friends, it is an experience I never had and I am glad she is doing it.
Teagan had a rough night last night, G-ma Dee stayed over since Ryan is in Vegas for business, and she stayed up with him and he was awake and moaning and even screaming from 3:30 am on, she gave him two doses of Tylenol and it didn't touch him. I called Bonnie to see if see thinks it could be withdrawals, but she didn't think so. He is also having runny poops and so we think it might be his formula. I called Stacey and she brought out new formula. I hope it helps, he is finally resting from about 9am on and I hope the day will just keep getting better. I called Dr. Harris also and of course on the day I really need him he is out until Friday.
Last but not least Teagan celebrated six months yesterday, the 10th, another month we feel blessed to have him with us. Big G, Kori, and Brooke came over with lunch, balloons, and some cute new outfits! I told my friend Angie and she said "If you do this much for monthly b-days I can't imagine his 1st b-day." Well you just wait!
Well I told you I had a lot to say and I'm sure I've forgotten stuff, I do want to send a few shout out's:
-to Ryan for being so supportive while I was at the hospital, for hiring people to clean the house, and for working so hard in this crazy market to pay for all of our new expenses.
-to Mason for giving up his mommy for so long, I hope you know I would do the same for you.
-to my Mom for being here all day every day and even some nights so I can catch up on rest and getting my house back in order.
-to my Dad for allowing my Mom to be gone to much.
-to Stacey for dinner and the formula run.
-to Michon and G-ma Maples for a delicious dinner on Sunday
-to Jeri and girls for the gas card
-to Big G for all of the Heart clothes, dinners, and making each monthly b-day so special
-to Big Mace for all the nights you have stayed up with Mom
-to Scott and Chris for making my b-day at the hospital so memorable
-to Kori for decorating the house
-to Brooke for doing all my laundry
-to Kim and Mike for making 2 special trips out to see us especially on your b-day
-to Chels for coming out to see T and spending the night at the hospital with me
-to Pam and Holly and the Bishop and the rest of the ward for all of your visits and kind words
-to my Heart Moms for being there for me and understanding me
-to everyone else who have fasted, prayed, put our names in the temple, left comments
THANK YOU WITH ALL OF MY HEART!
Biopsy and Fun
3 days ago