Well this blog is turning into a monthly thing isn't it?! Teagan turned 10 months on the 10th. He is officially sitting up all by himself, YEA! He has two teeth and loves to play with all of his new toys from Christmas. He has had two sets of Synagis shots and appointments for plenty more, we will keep him home for the rest of the winter and hopefully he can get out more come spring. Eating is still a mystery and we will just keep trying until he gets it. I sit down with him twice a day and give him baby food; some gets in, a small amount of that actually gets swallowed and most of it ends up all over his face, hands, and hair! It's a funny thing when people ask how Teagan is, I never know quite what to say, and I'm sure you other heart moms can relate, to us he is doing really well and we are excited about his daily advancements, but when you tell people he is doing really well they think... oh great he will just keep getting better yea!... well not exactly, but how do you explain that in a short conversation? If you spent a day with us you probably wouldn't call it great and normal, but to us the gaging, puking, being feed through a tube straight into his stomach, and several meds is NORMAL. Me and Ryan go out together and separately, we attend functions and leave Teagan home with Grandma. Our family is running, we are in a really good place! Teagan sleeps great, 11-12 hours straight (I get up twice to add food to his continuous feed and give four meds). So to us this is our Normal so when I say he is doing great, this is our definition of great! Teagan went to G.I.(the tummy doctor), in short although the appointment was long, we adjusted his meds, and started feeding him without the pump (by gravity). Dr. Jackson G.I. just can't believe how big he is 21 lbs at 10 months is big for a heart baby, even a tube feed heart baby! To back track a little we had a great December, lots of parties and celebrating. My Mom, Big G, and my aunts put together some really great baskets for the families that have to wait in the P.I.C.U. waiting room, full of blankets, pillows, toiletries, treats, ect. They were so wonderful, those are some long, hard days that you have to sit in that room and we pray that stuff just made it a little more bearable. We had a wonderful Christmas Eve, Christmas Day (snowed in) and a great week home together! We hope you all had a happy and healthy Christmas season! I hope you like the slide show (it's long):
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.