Not a very exciting day. Daddy spent the night and did most of the night time care, he even learned a few things. He learned to give meds, and check GT placement. I was able to get a pretty good nights sleep, thanks Ryan! We only had two pukes one while he got weighed (9lbs. 6oz.) and the other while I was down grabbing some dinner and Ryan was watching him. We had a discharge echo today, but I haven't heard the results, I hope no news is good news. It's not like in the PICU where they send someone to tell you right away, good or bad. I gave Teag's his bath and a Rowley rub down, after all he's been through he cries for a bath, but tip his head in a very awkward position for an echo and he will sleep right through it. He is off oxygen right now, so we will see how it goes. We had a car seat trial today, Teag's had to sit in the car seat for as long as our drive home will be and see if his stats drop, He passed. Hopefully it will be a nice easy night, since I'm alone. We didn't have much luck with the bottle today, but the therapist says we are doing good for an HLHS baby. She also told me Teagan looks the best out of her HLHS babies, they usually aren't so pink and alert. It is surprising how drained he gets from simple tasks like a bath, echo,eating, ect. Still looks like they are sending us home on Monday. Does anyone know where to buy a monitor, I just can't go home without one?!
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.