When I got here this morning with my Mom they had just extubated Teagan. He did not like it very much and it took an hour and a few extra drugs to get him calm. Yesterday was pretty quite in our bed. They did start to feed him and we are trying new formula and less calories to see if he can bottle feed, not that that matters right now since he is being feed NJ (bypassing the stomach) and only gets 5ml every hour. So far no cylo, which I asked Linda to leave a chest tube in for that reason (and it was still draining some). He also got a lot of lines taken out yesterday, the one in his neck, the big chest tube, the tube sucking out his stomach, his cath.(maybe that was the day before), RA line and I think that is it! He is on high flow o2 right now and we are just praying his lungs can handle it and open up real big, we pray for deep, calm breaths. Sorry it's not real exciting, but Teagan is older this time and needs more attention from me so I don't have a lot of time to post. The Internet here is slow so pictures are hard to get up but I will try. Thanks for all of your support and prayers. P.S. I did get to hold him to help calm him down, but with all his IV I think it hurt him worse.
Attitude is everything. Be kinder than necessary, for everyone you meet is fighting some kind of battle. Live simply, love generously, care deeply, speak kindly, because life isn't about waiting for the storm to pass... it's about learning to dance in the rain.